I was diagnosed with Parkinson’s almost 6 years ago at age 55, and like everyone else I was in shock when I heard those 3 words – you have Parkinson’s. This was right before life was contained at home due to COVID shutting everything down in March 2020. So, I did what everyone did when they were diagnosed; I dove into reading books, listening to podcasts, searching for research on the Internet, and frankly, I was overwhelmed with all that I was learning, but also hopeful at all the research and trials being conducted too.
We moved to Austin (for the 2nd and final time) in March 2021 while I was working as a global CFO of a private-equity backed software company and was so happy to see the robust PD medical community available here. After retiring in August 2024, I was then able to begin attending CAPS’ educational and support events and was impressed at the speakers and support community that existed. I joined the CAPS Board in January 2025 and became the Treasurer in April 2026.
Being part of an organization that provides education and support to the Parkinson’s community is so important to me because when I was diagnosed over 6 years ago, there was nothing like CAPS in the community where I then lived. Being on your own with a new PD diagnosis was not easy. CAPS is fortunate to have so many volunteers, advisors, and board members with deep subject matter expertise that directly supports People with Parkinson’s and their families. In the past 2 years, CAPS launched 2 young onset support groups, which meet in the evenings given this demographic is generally still working like I was. We also hold 3 annual conferences addressing Parkinson’s Disease, the newly diagnosed PD population, and Care Partner Support.
If you’re looking to visit one of our monthly events, I recommend the 3rd Thursday Health Education Meeting. Each month we host a different medical professional who walks us through a topic and answers questions. Check out the Calendar under Events on our website. Lunch is provided too!
Jeff Byal